by Chloé Cooper Jones
Read by the author
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Content: there are some disturbing conversations about people with disabilites, and swearing, including some f-bombs. It’s in the Biography section of the bookstore.
I’m not sure what I expected when I started this memoir about a woman who has gone through life with a rare condition that affects her physical appearance and the way she interacts with the world. But, it also affects the way other people see her, the way she is regareded in the world. She literally sits in aa conversaiton where friends of hers (friends!) debate whether or not her life was worth living. She is told by doctors that she can’t get pregnant and then she is left ot wonder if it’s “fair” to bring a child into her world.
The book also muses on connections humans make as she goes through dealing with her father’s multiple affairs, and on art as she tries to make sense of her world through the beauty of someone else’s imagination. She travels and experiences the world that way. It’s got stories, yes, but also thoughts about art and connection and life and motherhood that I found both insightful and valuable. I learned a lot about how Jones looks at the world and how being dismissive of the experiences of those with disabilities is damaging and limiting.
Jones was a good narrator, telling her own story and keeping me engaged throughout. It’s not what I usually read, but I am really glad I did.